(via clitorium)
Catherine.
Straight edge. 16. Michigan.
Living with CVID, and staying positive
me. facebook.
• Ask me anything
Whatever, man.
[Flash 9 is required to listen to audio.]
The Worst of Both Worlds | Backtrack
KORF!
I keep watching exorcism movies on Netflix and falling asleep. I have no idea why I can’t stay awake. This girl is screaming and spitting on people and killing doctors and ripping her clothes off.
bl4sphemy asked: yeah my port failed in the 4th grade, the whole experience with it had been so traumatizing the that i chose not to get another one. so i've been doing iv's in my hands or arm. we have to keep the gammaglobulin at like 10 grams because i get AWFUL side effects.
Oh geeze. Where was yours? Mine finally failed when I hit early middle school after getting 4 or 5 different ones.
bl4sphemy asked: (2)he responded by asking me if i had aids. i almost lost it because it's ignorance and judgement that makes me not want to tell people. he forgot the next day. sometimes i want to stop keeping it a secret, but im a little scared.
Don’t ever be scared of that :] I’ve had people assume that I have AIDS as well and it’s the most obnoxious thing to deal with. Most of my friends know and they’re all really nice and supportive. The home infusions are great, it’s 45mls of Hizentra and it goes into 4 needles in my belly. Most of the time, I’ll put them in and go into town and just hang out. Super easy to deal with. Until I started doing that, I was getting monthly blood infusions through a port-a-cath in my chest but all the complications and fluctuation of my energy level were too bad to continue.
bl4sphemy asked: haha^__^ thats fine you dont have to reply privately~ three is really young, wow. out of curiosity, are you open about it to your friends and peers?
Yeah, I am. It’s hard to hide, really. I do my own subcutaneous infusions every week so yeah. Are you?
bl4sphemy asked: i decided to search the cvid tag on tumblr. i didnt think i'd find anything. i've been dealing with this disease since i was six and im crying tears of joy because for once in my lifetime i dont feel alone.
Aww geeze :’] I was diagnosed when I was three and I’ve only ever met a few other people with it. I’m glad you don’t feel alone anymore! I’m on my phone right now so I can’t privately reply but some of my followers also have CVID. So yeah, you definitely aren’t alone c:
[Flash 9 is required to listen to audio.]
The World is a Beautiful Place & I am No Longer Afraid to Die - Be Neon With Me
We’re doomed to kiss each other while we lay in bed discovering what it’s like to eat lead and the sickness that can come from it. The radiator dries your mouth out. Oh my word you were a songbird, but your songs were a canon that shoots buildings. What habitat will you live in? Well, I won’t know because I won’t see you. Take the skin from our hands. If Ethan stretched it across the river we would walk to our target. Our own desperate bodies.
(via eyehatebobby)
[Flash 9 is required to listen to audio.]
dropdead - at the cost of an animal
Don’t you realize you’re eating death?
The taste in your mouth is the corpse on your breath.
(Source: letitflowzip, via grrrly-butthole-hair)
